Volume 3, Issue 2 (Spring 2017 -- 2017)                   JCCNC 2017, 3(2): 139-146 | Back to browse issues page


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Madmoli M, Madmoli Y, Rahmati P, Adavi A, Yousefi N, Gheisari Z et al . Quality of Life and Some Related Factors in Patients With Beta Thalassemia Major in Southwest Iran. JCCNC 2017; 3 (2) :139-146
URL: http://jccnc.iums.ac.ir/article-1-115-en.html
1- Student Research Committee, Dezful University of Medical Sciences, Dezful, Iran.
2- Student Research Committee, Ahvaz Jundishapur University of Medical Sciences, Ahvaz, Iran.
3- Department of Nursing, Faculty of Nursing and Midwifery, Dezful University of Medical Sciences, Dezful, Iran. , ahmad_adavi@yahoo.com
4- Imam Ali Hospital, Gerash University of Medical Sciences, Gerash, Iran.
5- Student Research Committee, Shushtar Faculty of Medical Sciences, Ahvaz Jundishapur University of Medical Sciences, Ahvaz, Iran.
6- Student Research Committee, Kerman University of Medical Sciences, Kerman, Iran.
Abstract:   (4829 Views)
Background: Thalassemia is one of the most common genetic disorders in the world, especially in Iran. The study of various aspects affecting the physical and mental health of patients with beta thalassemia major has become more important. The aim of this study was to evaluate the Quality of life and some related factors in patients with beta-thalassemia major in Southwest Iran.
Methods: In this cross-sectional, descriptive study, quality of life and related factors in 112 thalassemia major patients with available sampling attending Dezful Thalassemia Center has been studied in the first three months of 2015. Data collection was based on self-report including demographic questionnaire and 36-SF quality of life questionnaire. Finally, the data were analyzed using SPSS software version 18 and chi-square test, T-test, and Pearson’s correlation coefficients.
Results: Patients with beta thalassemia major, including 66 males (58.92%) and 46 females (41.07%) with a mean age of 23 years were enrolled in the study. The lowest and highest scores were obtained in general health (63.59) and physical functioning (85.25), respectively. Findings showed that there is no statistically significant difference (P = 0.025) between men and women in all aspects of quality of life except role disorder. It was also found that married people have a higher quality of life and mental health in comparison to other people (P < 0.05). In addition, there was a negative correlation between age and physical health, mental health, and quality of life total scores which were not statistically significant (P = 0.46). 
Conclusion: The present study results showed well that age, income level, and marital status indices play a very important role in the maintenance of quality of life and the reduction of negative effects of disease on patient’s mental and physical health. The limitations of this study are to examine the dimensions of quality of life in a center. It seems that future studies should look at ways to improve their quality of life.
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Type of Study: Research | Subject: Special
Received: 2017/01/3 | Accepted: 2017/03/29 | Published: 2017/05/1

References
1. Alavi, A., et al., 2007. [Comparison of perspective of children with major thalassemia and their parents about their quality of life in Shahrekord (Persian)]. Journal of Shahrekord University of Medical Sciences, 8(4), pp. 35-41.
2. Alijany Renany, H., et al., 2012. [The effect of using partnership care model on the quality of life in the school age children with β-thalassemia (Persian)]. Journal of Shahrekord University of Medical Sciences, 14(1), pp. 41-9.
3. Arian, M., et al., 2013. [Impact of an 8-week walking program on quality of life in patients with thalassemia major (Persian)]. KAUMS Journal (FEYZ), 17(5), pp. 463-70.
4. Azad, M., Shiargar, P. & Kazemi Haki, B., 2015. [Quality of life in patients with thalassemia major referred to Ardabil Buali Hospi-tal in 2012-13 (Persian)]. Medical Science Journal of Islamic Azad Univesity-Tehran Medical Branch, 25(4), pp. 305-10.
5. Costantini, M. et al., 2013. Changes in the quality of life of people with thalassemia major between 2001 and 2009. Patient Preference and Adherence, 7, pp. 231-6. doi: 10.2147/ppa.s42133 [DOI:10.2147/PPA.S42133]
6. Gollo, G., et al., 2013. Changes in the quality of life of people with thalassemia major between 2001 and 2009. Patient Preference and Adherence, 7, pp. 231-6. doi: 10.2147/PPA.S42133 [DOI:10.2147/PPA.S42133]
7. Hadi, N., Karami, D. & Montazeri, A., 2009. [Health related quality of life in major thalassemic patients (Persian)]. Payesh Journal, 8(4), pp. 387-93.
8. Hamed Tavassoli, S. & Alhani, F., 2012. [Nurses' problems in promoting quality of life of children suffering from thalassemia (Per-sian)]. Preventive Care in Nursing & Midwifery Journal, 2(1), pp. 36-44.
9. Khaledi, S. H., Moridi, G. & Valiee, S., 2013. [Comparison the quality of life of healthy and thalassemic children (Persian)]. Iranian Journal of Nursing Research, 8(2), pp. 87-94.
10. Khani, H., et al., 2012. Quality of life of Iranian [Beta]-thalassaemia major patients living on the southern coast of the Caspian Sea. Eastern Mediterranean Health Journal, 18(5), pp. 539-45. PMID: 22764445 [DOI:10.26719/2012.18.5.539] [PMID]
11. Mahmoudi, G. R., et al., 2012. [Effect of self care program on the quality of life in sickle cell anemia (Persian)]. Jundishapoor Scientific Medical Journal, 11(2), pp. 201-11.
12. Masoudi, R., et al., 2009. [The effect of self care program education based on Orem's theory on mental aspect of quality of life in multiple sclerosis patients (Persian)]. Iran Journal of Nursing, 22(60), pp. 53-64.
13. Montazeri, A., Goshtasbi, A. & Vahdaninia, M. A. S., 2006. [The short form health survey (SF-36): Translation and validation study of the Iranian version (Persian)]. Payesh, 5(1), pp. 49-56.
14. Moser, D. K., 2002. Psychosocial factors and their association with clinical outcomes in patients with heart failure: Why clinicians do not seem to care. European Journal of Cardiovascular Nursing, 1(3), pp. 183–8. doi: 10.1016/s1474-5151(02)00033-6 [DOI:10.1016/S1474-5151(02)00033-6]
15. Muncie Jr. H. L. & Campbell, J., 2009. Alpha and beta thalassemia. American Family Physician, 80(4), pp. 339-44. PMID: 19678601 [PMID]
16. Tahmasbi, S., Aein, F. & Heravi Karimuoe, F., 2007. B-thalassemia children and quality of life: Does the present condition justify children's quality of life. Journal of Holistic Nursing And Midwifery, 17(1), pp. 23-30.
17. Thavorncharoensap, M., et al., 2010. Factors affecting health-related quality of life in Thai children with thalassemia. BMC Hematol-ogy, 10(1). doi: 10.1186/1471-2326-10-1 [DOI:10.1186/1471-2326-10-1]
18. Zare, K., et al., 2014. [Comparison of quality of life of young people with thalassemia referred to thalassemia Shafa hospital in Ah-vaz members of their families (Persian)]. Research in Nursing, 8(4), pp. 42-50.

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